OK, so I forgot to put up an update for Saturday, so I'm just doubling up today's update to cover both days. Zac continues to eat at the same pace. Same amount, about the same results. He'll do real well with the bottle for a bit, then all of a sudden not take it completely and have to get the rest via his feeding tube.
This morning was no different. While I had to be at the church at 7 this morning to set up for running sound, Katy stopped in before church to feed Zac. He did fairly well, but then spit up quite a bit. Just like all babies, but until he's a little heavier, they'd rather he not.
To ease the spitting up, they've elevated the head of his bed. Thing is, he's a very active sleeper. Yesterday morning, the nurse came in twice to find he'd wriggled his way down to the bottom of the crib and had his legs sticking out the end. :) Today, they fashioned a kind of hammock, if you will, that lays flat and keeps him from sliding down. Essentially they tie two ends of a blanket to the rails at the top and create this hammock-like structure he can keep his tush in. :) That seems to be working because he's moving about as always, but now not going anywhere.
No other real news to report except that, as we expected, his final blood work (the one for the fatty acids/metabolism) did come back late Friday and it was negative, meaning he passed all of his tests just fine. We assumed it, but it was good to receive confirmation on that front. He's still eating the same amount he has for a week, which is an ounce and a half, every three hours. Doesn't matter a ton that this go way up right now. The only real key is he keeps gaining weight and eventually eats every meal by bottle or by mom. Hopefully that light switch will go on this week because a few days after it happens, he'll finally get to come home.
The sooner he is home, the better. His mom and dad are pretty worn out and drained emotionally at this point and just need this saga to be over. Though we've been prepared for a long timeframe from the start, it doesn't help. When you're driving up here every day to see him, and it feels like the rest of the time he has his own nanny, it just doesn't feel right and it's getting tougher to swallow. Katy appears to be handling it a little better than I am at this point. For me, the combination of this with not being able to find a job for so long has reached kind of a breaking point and emotionally I am exhausted. I'm definitely more irritable lately than I have been, and I know the stress has everything to do with it. If you could keep both Katy and me in your prayers concerning this, we'd really appreciate it.
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